THE FIGHT for improved services for sufferers of muscular dystrophy was voiced to a senior councillor at a special meeting.
County Cllr Bill Bentley, who represents Hailsham, is the Lead Member for Adult Social Care and was the guest speaker at the South East Coast Muscle Group.
He told the audience about the latest adult social care developments and they debated the care and health services on offer for people who suffer from the muscle weakening disease.
Cllr Bentley said: “This was an excellent opportunity to speak to people who have a stake in the future of adult social care and the health services. Working with our partners in the NHS we can learn what they really need which helps us to deliver services in the best way possible”.
Phillippa Farrant, the chairwoman of the South East Coast Muscle Group, said: “We were delighted to have the opportunity to speak to Cllr Bentley about our fight for improved services across the region and to hear about the latest developments in adult social care.
“Too often vulnerable patients and their families are forced to go without the vital care they need for their condition. Through our campaigning work, we are calling for additional investment in these specialist services.”
The South East Coast Muscle Group meets three times a year and works with the Muscular Dystrophy Campaign, the NHS, clinicians and politicians to improve neuromuscular services in the region.
The group provides an opportunity for people living with muscle disease to share their experiences and difficulties and to develop local campaigns.
There was also a talk from Mike Lander of the South East Coast Specialised Commissioning Group who gave an update on efforts being made to improve neuromuscular services in the region.