Pupils join brave girl’s cancer fight in Lewes

Banding together: The Western Road youngsters set up their own loom bands 'factory' to help raise money
Banding together: The Western Road youngsters set up their own loom bands 'factory' to help raise money

Children at a Lewes primary school have given their support to a desperately ill eight-year-old girl.

She is Niamh Storey-Davidson who is suffering from a rare form of cancer.

The local youngster urgently needs funds to travel abroad as there are few licensed treatments available in the UK for children her age.

Niamh became firm friends with Agatha Palmer, a pupil at Western Road Community School in Lewes, when they were both being treated at The Royal Alexandra Children’s Hospital, Brighton.

Agatha, nine, who is currently receiving treatment for Non Hodgkins Lymphoma, told the school of her friend’s plight and they have risen to the fundraising challenge.

The school’s Community Action Club used the last meeting of the term on Friday to make loom bands to sell in aid of Niamh’s Fund.

To the uninitiated, loom bands are the big summer craze – fuelled by the Duchess of Cambridge being pictured wearing them.

Strands of colourful elastic can be formed into bracelets, necklaces and even rings.

The Loom for Niamh initiative invited participants to raise money in three easy steps – loom a band, tell your friends and family and then exchange your band for a donation online at uk.virginmoneygiving.com/team/NiamhsFund

Young Niamh loves animals. She dreams of owning a puppy and swimming with dolphins. But her world turned upside down two and a half years ago.

She was diagnosed with Wilms Tumour, a rare childhood cancer that starts in the kidneys.

She has undergone major surgery several times, has had radiotherapy and more than 70 cycles of chemotherapy. Niamh accepts all she goes through with grace, but cancer has stolen much of her childhood.

Her family, Gilli, Adam, Calum, Ethan and Zachary, said: “It’s time we get one step ahead of this disease and give her a happy future. We want to leave no stone unturned. We need to give Niamh the very best chance of beating this disease for good.

“We’ve set up Niamh’s Fund to enable us to access treatment for Niamh that is not available on the NHS, both in the UK and abroad.”

They added: “Thank you very much for your support. It means so much.”

Any money raised will go to the charity Bethany’s Wish and will be used to help fund Niamh’s treatment. Any funds not used will go specifically to support desperately needed research into relapsed Wilms Tumour cases.

Visit www.facebook.com/niamhsfund to find out more.