I would like to draw attention to the on-line petition: https://petition.parliament.uk/petitions/118175
Last January my 15-year-old grandson was in the top grade at school, had a paper round and many friends to socialise with.
A year on, he is bed-ridden, constantly in pain, unable to attend school or see friends due to having severe ME. There are many other symptoms he has to endure.
There is no cause or cure so research is desperately needed hence the petition.
Please take a look and sign, only an email address is required from you and maybe one day people living with ME/CFS can have hope.
Sussex Close, Hailsham