Megan Spence passed away in hospital in Belfast on Saturday, January 7, at the age of 22, surrounded by her family and friends.
In a message to her many friends, her dad Mark Spence posted on Facebook: “Our wonderful beautiful daughter Megan Spence has gained her wings today.
“After over a two year battle against Leukaemia and a stem cell transplant she finally couldn’t fight any longer and passed away peacefully this morning in Belfast surrounded by family and friends. Fly high baby girl.”
Megan, a popular former pupil at St Philip Howard High School in Barnham, was born in Belfast, Northern Ireland, moving to Littlehampton with her family aged seven or eight.
She was diagnosed with acute myeloid leukaemia in August 2015, aged 20, the day she was due to start a work placement while studying at Bournemouth University.
In her blog, called ‘welcome to the bald side’, she spoke candidly and often humorously about her condition, treatment and bone marrow transplant in 2016 thanks to her ‘amazing’ brother Shane’s cell donation.
It was read by thousands of people, inspiring many with similar health conditions.
Hundreds of people attended her funeral in Belfast last week.
Megan’s mum Annemarie Spence said: “It’s been quite humbling the volume of people who came, the chapel was packed with around 300 people.
“There was about 53 people over from England, some of her Uni friends, friends from Littlehampton and St Philip Howard.
She said: “She was ill for about two-and-a-half years.
“In this day and age you think we beat these things, but despite the very best of care at Southampton Hospital, she couldn’t.
Paying tribute to her, Mark said: “She was always determined she was going to get to everything, regardless of how she was feeling, her life was all about that.
“Something that stuck with me was when she told her consultant at Southampton, who was fabulous: ‘You know you’re only keeping me alive so I can go to my friends’ funerals’.”
He said: “We probably have the same sense of humour. She was the big organiser, she organised her friends, where they would always go.
“For her school prom she organised an open top bus for everyone to arrive in, that was her way, she was in the middle of everything.
“She really loved to shop, she was a world-class shopper.
“She was a very public person, she loved people, her friends and family, she was an open book.”
Megan was treated on the Teenager and Young Adults ward in Southampton, and in one of her last blogs, on August 26, 2017, she wrote: “In the last 2 years I’ve met some incredible people, who have no doubt changed my life forever, some of those people who have since passed away but none the less I will never forget.”
Writing about her pride in graduating from university on her Facebook page, Megan wrote: “Proud to say that even after everything these past 2 years I will be graduating Bournemouth University with a 2:1!
“Slight anti climax receiving the results in hospital but hopefully shows the future is bright and I’m onto bigger and better things.”
Mark, the chairman of Littlehampton Youth FC, said the family had been heartened by the many messages from people who had been inspired by his daughter’s blog.
He said he planned to write a final addition, and said he would also carry on the online business he and Megan set up while she was ill, Foundry Cast Iron, after he had to give up work to look after her.
He said: “She had a real spark to get on with life, she finished Uni despite everything and together we set up what’s turned out to be a successful business.
“The blog she did, we have had so many messages from people who never met her, never knew her but came across her blog talking about how inspirational they’ve found her. So I think I will have to finish it at some point in the future.”
He said Megan was able to enjoy a Christmas day with her entire family in Belfast before she was taken to hospital, where she passed away.
Mark said her friends at St Philip Howard High School were planning a special celebration of her life, with a date to be confirmed.