A campaign to raise money and awareness for charity in memory of Annie Edwards has accumulated more than £1,300 in donations already.
The teenager passed away at a house party in Ditchling on February 20, 2015. An inquest into her death held earlier this month found she died of an undiagnosed and rare heart condition called Brugada Syndrome.
In a bid to raise awareness of SADS (Sudden Arrhythmic Death Syndrome), her parents Helen and Stephen is calling on the Government to introduce mandatory screening for often undetected heart defects.
They have also set up a Just Giving page to raise money for Cardiac Risk in the Young, a charity which aims to save young lives and to help those affected by the sudden cardiac death by providing support, information and screening. So far, the page has raised £1,385.
On the website, Annie’s parents wrote: “Anyone who comes here will know Annie’s story - a lovely, happy, apparently fit and healthy 17-year-old girl who died in her sleep. We’re making this page available for anyone who would like to donate to a charity that researches and campaigns on SADS.”
Visit www.justgiving.com/lewesannie to donate or www.c-r-y.org.uk for more information on the charity.
Don’t miss out on all the latest breaking news where you live.
Here are four ways you can be sure you’ll be amongst the first to know what’s going on.
1) Make our website your homepage at www.sussexexpress.co.uk/
2) Like our Facebook page at www.facebook.com/pages/Sussex-Express/
3) Follow us on Twitter @sussex_express
4) Register with us by clicking on ‘sign in’ (top right corner). You can then receive our daily newsletter AND add your point of view to stories that you read here.
And do share with your family and friends - so they don’t miss out!
The Sussex Express - always the first with your local news.
Be part of it.