A man has told how he tragically lost both of his brothers to a chronic life-shortening disease.
Kevin Miller, 48, from Ringmer said his brothers Michael and Keith both died from Cystic Fibrosis.
Michael died at the age of 19 and Keith when he was only a few weeks old.
Cystic Fibrosis is a life-shortening genetic condition and only half of people living with the condition celebrate their 40th birthday.
It causes the internal organs, especially the lungs and digestive system to become clogged with thick sticky mucus resulting in chronic infections and inflammation of the lungs.
Kevin, who works at Lewes District Council as a refuge truck driver, said he is now going to run 2500km over the course of a year to raise funds to help beat the illness and pay tribute to his brothers.
Kevin said: “I lost two brothers to this condition and I have friends who have it too, so I am taking on this tough challenge in the hope that my fundraising can help beat cystic fibrosis for good.”
Kevin said he is determined to raise as much money and awareness for the Cystic Fibrosis Trust as he can through the challenge. He is aiming to raise £2,500 for the charity.
He continued: “I decided to start and end my year with the ‘London 2 Brighton’ event, which will be incredibly difficult to train for and run, but the thought of what people with cystic fibrosis have to endure on a daily basis will help me through it.
“I am very grateful for the local support that I have received so far, I am really passionate about this and I want to do everything I can to reach my fundraising target.”
Claire Phillips, who is Cystic Fibrosis Trust’s community fundraising development manager said: “Kevin is very brave to take on this huge challenge of running 2500km in 365 days and we wish him the best of luck with it.
“Running the equivalent of around 6km everyday demonstrates extreme dedication and we are incredibly grateful for Kevin’s fundraising efforts by running and training for this challenge. Money raised will enable the Cystic Fibrosis Trust to invest in cutting-edge research to develop better treatments. It will also provide support to those with cystic fibrosis and their families and help the Trust to drive up standards in medical care.”
Kevin will begin his epic challenge on Saturday (May 23).
Anyone wanting to help Kevin to achieve his £2,500 fundraising target can do so by visiting: https://www.justgiving.com/Kevin-Miller-runs-2500-kms. To follow Kevin’s upcoming fundraising challenges please visit his website: http://www.kevin-runs-for-cystic-fibrosis-trust.uk.
Cystic fibrosis is a life-shortening genetic condition.
It directly affects around 10,000 people in the UK.
The faulty gene is carried by over two million people in the UK, most of whom have no idea. If two carriers have children, there’s a one in four chance their child will have the condition, which slowly destroys the lungs and digestive system.
To find out more about the charity, the condition or to seek advice visit www.cysticfibrosis.org.uk or call the charities helpline on 0300 373 1000.