A teenager from Hastings is having all of his hair shaved off to raise money and awareness of a disease he suffers from.
Mathew Barry, 15, has Raynaud’s Phenomenon, a condition that affects the blood supply to certain parts of the body, usually the fingers and toes.
From the age of four he developed Raynaud’s in his hands and fingers. They were frequently white at the ends, inflamed and became very painful when he hit them on things by accident or just doing daily tasks like getting dressed. In his early years he suffered from infections, had issues with swollen glands and was often fatigued.
Mathew very rarely attends a full week at school because of the fatigue.
His mum, Joanna, said: “In the early days there was lots of little things like achy joints, swollen glands, and rashes but when I took Mathew to the doctors about his hands they said it was Raynaud’s and if we went to see a consultant they would put Mathew on tablets for the rest of his life. When we saw the consultants they took one look at Mathew and said he had Raynaud’s and scleroderma, a rare autoimmune condition.”
Mathew said: “My parents are always telling me to get a hair cut. So I thought I would and raise money and awareness for a condition that affects me every day. It’s very annoying at times, but unfortunate, there’s no getting rid of it so I just carry on.”
The teenager is having his hair shaved off on Friday, February 13 with the support of his friends and family.
People can donate via Mathew’s justgiving page justgiving.com/J-Barry1.
Alternatively people can text donate. Text MBSH50 and the £amount (£5/£10) to 70070.