David needs bone disease "buddy"

He likes football and spending time with his friends, but when other young children are running around and enjoying themselves, David has to sit on the sidelines and watch due to a rare bone disease.

David, from Brighton Road, East Worthing, was diagnosed with unicameral '“ a bone cyst in the upper leg '“ two years ago and this has now developed into a secondary cyst known as an aneurysmal.

At the moment, the only physical activity David can take part in is swimming and, although the condition is not life threatening, a knock to his leg could result in a fracture or break.

The disease, which affects children, is so rare there are no support groups in this country to help the sufferer and their families.

David's parents, Kerri and Michael, are searching for other people in their position to talk to and would like David to meet another child with the condition.

Kerri said: "It is quite stressful to live with. I find myself watching him all the time. Even if he trips over in the street there is a risk of his bone breaking."

Around 18 months ago, David had an operation to remove the cyst and bone marrow was placed into the bone to encourage regrowth of the inside.

This left the seven-year-old in a full body cast for six weeks. He could only move around by lying on a skateboard on his stomach and pushing himself along.

After this, a secondary cyst developed inside the bone.

Kerri said: "All we are looking for is someone who has been in the same situation as us. It's quite isolating when someone has a condition that is so rare. There are lots of support groups for many different illnesses but not for this one. We are just looking for someone to talk to and compare the different treatments available."

The Coopers now have to decide whether David should have further treatment which could include a bone graft or taking steroids. If the cyst was in his arm, David may have been able to continue untreated, but because the leg is a weight-bearing limb, treatment is important.

If you know anyone who is suffering from the disease and would like to speak to Kerri or Michael, call 01903 202719.