Christopher James from Oving died ten years ago. He had suffered a hepatitis-related bleed on the brain that left him unable to read, write or talk for the last five years of his life.
He had been one of a reported 3,891 people said to have been infected after being given imported Factor VIII, a form of blood coagulant, to treat haemophilia in the 1980s.
His widow Marjorie, now 80, said she lost the love of her life and she hoped the inquiry this month would give the family much-needed answers.
Chris was given Factor VIII for a knee injury and an extracted tooth in 1981 and 1984, neither of which she believed were justified uses. The contamination issue was first communicated in 1992.
“I remember him coming home and saying, I’ve got hepatitis C and I’m going to die of this. There was no counselling, you were just sent home. We decided to try and forget about it. The interesting thing about hepatitis C is it lies dormant for 15 years of more but you just get slow side effects and then it really blew up.”
She said Chris became ‘seriously ill’ nine years before he died and praised staff at St Richard’s for their care when Chris was rushed to hospital bleeding from his mouth.
Marjorie said the experience was ‘horrific’ and traumatic and her husband remained very ill until his death in 2008. She gave up work to care for him but the family was told all documentation on Chris’ Factor VIII treatment had been destroyed.
“The government gave an ex gratia payment to my husband, they wouldn’t say it was compensation they’ve never admitted fault and this is what we’re hoping to find out, is for them to admit they were wrong.”
She said she was sad Chris’ grandchildren had never known him as the intelligent and loving man he was, who enjoyed sailing in his free time.
The inquiry hearings start on September 24. Marjorie’s daughter is considering attending on behalf of the family.