Sussex support groups offer help for people living with PMR and GCA

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Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis (GCA) are serious and often debilitating inflammatory conditions, yet most people have never heard of them.

Members of the Worthing PMRGCAuk support groupplaceholder image
Members of the Worthing PMRGCAuk support group | My photo. Permissions to use gained.

PMR causes pain and stiffness in the shoulders and hips, and can make getting out of bed and walking difficult. GCA can cause severe headaches and fatigue. If left untreated, it can lead to irreversible sight loss. Early diagnosis and treatment are essential.

The charity PMRGCAuk provides information and support for people affected by these conditions. It runs a network of support groups across the country, funds research and produces educational resources. The charity was recently featured on the BBC as part of a Lifeline appeal, helping to raise awareness of the conditions. Support is available in several ways:

  • Local support groups: Groups meet in Chichester, Worthing, Brighton, Eastbourne and Hastings, and new members are always very welcome. To contact the Worthing group, visit the charity’s local support group page: https://pmrgca.org.uk/get-support/groups/
  • Helpline: The charity’s helpline offers friendly, confidential advice and support. Call 0300 111 5090.
  • Website: Information, guides and details of local groups are available at pmrgca.org.uk.
  • Online forum: People can share experiences and get peer support on the PMRGCAuk community forum on HealthUnlocked at healthunlocked.com/pmrgcauk.
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